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Updated by Emma Casey Rooney on Dec 17, 2015
Headline for Tips for Sharing Your Patient Story with Pharma
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Emma Casey Rooney Emma Casey Rooney
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Tips for Sharing Your Patient Story with Pharma

Listly by Emma Casey Rooney

The value of engaging patients in all aspects of healthcare is rapidly gaining acceptance, and with this comes more invitations for patients to share their stories with pharmaceutical and biotechnology companies. What role can patients play in helping make these storytelling opportunities more meaningful?

Source: https://globalgenes.org/raredaily/running-on-stories-tips-for-sharing-your-story-with-pharma/

1

Find out more before accepting an invitation to share.

2

Own your story.

3

Educate yourself on the regulations and protect your privacy.

4

Be transparent.

5

Know who your audience is, so that your presentation strikes the right balance: informative with a challenge.

6

Don’t be token.

7

Discuss compensation – not everything we do as patient advocates should be voluntary.

8

Keeping growing your relationships with industry. Be public.