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Updated by The Road We've Shared on Nov 03, 2015
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Alzheimer's and Down syndrome

A list of sites that contain resources for those with a dual diagnosis of Down syndrome and Alzheimer's disease.

Aging and Disability Resource Center Program (ADRC)

Maps of state ADRC program profiles

National Task Group on Intellectual Disabilities and Dementia Practices

What are we? The 'NTG' is a coalition of individuals and organizations working toward ensuring that the needs and interests of adults with intellectual and developmental disabilities who are affected by Alzheimer's disease and related dementias - as well as their families and friends - are taken into account as part of the National Plan to Address Alzheimer's Disease.

Study led by Temple researchers reveals new link between Down syndrome and Alzheimer's

Individuals with Down syndrome who survive into adulthood face the additional challenge of early-onset dementia, in which toxic amyloid plaques build up in the brain. The condition is strikingly similar to Alzheimer's disease, and as new work led by researchers at the Lewis Katz School of Medicine at Temple University shows, dementia in Down syndrome involves defects in a regulatory enzyme known as γ-secretase activating protein, which also happens to malfunction in Alzheimer's disease.