The Road We've Shared
A list of sites that contain resources for those with a dual diagnosis of Down syndrome and Alzheimer's disease.
Maps of state ADRC program profiles
What are we? The 'NTG' is a coalition of individuals and organizations working toward ensuring that the needs and interests of adults with intellectual and developmental disabilities who are affected by Alzheimer's disease and related dementias - as well as their families and friends - are taken into account as part of the National Plan to Address Alzheimer's Disease.
Individuals with Down syndrome who survive into adulthood face the additional challenge of early-onset dementia, in which toxic amyloid plaques build up in the brain. The condition is strikingly similar to Alzheimer's disease, and as new work led by researchers at the Lewis Katz School of Medicine at Temple University shows, dementia in Down syndrome involves defects in a regulatory enzyme known as γ-secretase activating protein, which also happens to malfunction in Alzheimer's disease.
The Road We've Shared is an online community for parents and caregivers of adults who have Down syndrome
