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Updated by Bev K Hayes on Aug 13, 2015
Headline for My Top 25 Parkinson's Disease & Caregiver Resources
Bev K Hayes Bev K Hayes
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My Top 25 Parkinson's Disease & Caregiver Resources

This is a helpful guide to resources for those living with Parkinson's Disease, their caregivers, family and friends. From books, to websites, to twitter, these people know a great deal about this disease and offer encouragement and support to those on an undesired journey. They will help lighten your load and provide hope and laughter along the way.

Coordination Service

Create a free of charge, private, web-based community to organize family, friends, neighbors, and colleagues - a family's circles of community - during times of need. Easily coordinate activities and manage volunteers with our intuitive group calendar. Communicate and share information using announcements, messages boards, and photos.

NPF (@ParkinsonDotOrg) | Twitter

The latest Tweets from NPF (@ParkinsonDotOrg). The National Parkinson Foundation's mission is to improve the quality of care for people with Parkinson's disease through research, education and outreach. United States

The Michael J. Fox Foundation for Parkinson's Research | Parkinson's Disease Information

The Michael J. Fox Foundation is dedicated to finding a cure for Parkinson's disease through an aggressively funded research agenda and to ensuring the development of improved therapies for those living with Parkinson's today.

National Parkinson Foundation: Believe in Better

We make life better for people with Parkinson's through expert care and research. Everything we do helps people actively enjoy life with their friends, families, children and grandchildren until there is a tomorrow without Parkinson's. We fight for people living with Parkinson's and their families. We are in this together.


A blog about aging-related topics and experiences.


Caring for You as You Care for Family and Friends

Parkinson's Disease Foundation (PDF) - Hope through Research, Education and Advocacy

A national nonprofit dedicated to Parkinson's disease research, education and advocacy. PDF is working for the nearly one million people in the US who live with Parkinson's disease by funding promising research to find the causes of and a cure for Parkinson's while supporting people with Parkinson's disease, their families and caregivers through educational programs and support services.

APDA (@APDAParkinsons) | Twitter

The latest Tweets from APDA (@APDAParkinsons). APDA is the country's largest grassroots organization serving the millions of people with Parkinson's disease, their caregivers, and families. Call 800-223-2732. Staten Island, NY

The PD Gardener (@PDGardener) | Twitter

The latest Tweets from The PD Gardener (@PDGardener). Person with Parkinson's (PwP). After family, gardening is my love and therapy. Tweets are related to Parkinson's and/or gardening. Ottawa Ontario Canada

Parkinson's Humor (@YumaBev) | Twitter

The latest Tweets from Parkinson's Humor (@YumaBev). Parkinson's disease since mid 90's, DBS in 2012 & Breast Cancer in 2013. Funny stories & helpful tips about life with all 3 of these. Come laugh along with me!. Yuma, AZ

Ron Gardner (@battlingpd) | Twitter

The latest Tweets from Ron Gardner (@battlingpd). is primarily focused on raising awareness and funds for Parkinson's research. All fund raising goes to the Davis Phinney Foundation. Howell, NJ

Sherri (@inspireme39) | Twitter

The latest Tweets from Sherri (@inspireme39). I love the beach,surfing and art. Love music-#PearlJam & #Soja.. A fan of #UNC & #DallasCowboys.My dad has #Parkinson's

Koko Kawasaki (@KokoKawasaki) | Twitter

The latest Tweets from Koko Kawasaki (@KokoKawasaki). MA Gerontology. #SFSU Alumni. Sharing information, exploring possibilities, connecting ideas + people. #olderadults #healthyaging. San Francisco Bay Area, CA

ParkyWife (@parkinsonsdis) | Twitter

The latest Tweets from ParkyWife (@parkinsonsdis). As Parkinsons becomes more intrusive, life is about project managing exercise routines for us both &Family&Singing& SupportForBreastFeeding&Food&Bikes

Tweets with replies by B (@WriteRunLive) | Twitter

The latest Tweets and replies from B (@WriteRunLive). chief navigator, woman behind the man w/parkinsons. mom, writer. prone to sudden outbursts of song. love God, love others. my motto: laugh more, fear less. * WRITE * RUN * LIVE * (@MichaelJFoxOrg) | Twitter

The latest Tweets from (@MichaelJFoxOrg). The Michael J. Fox Foundation is dedicated to finding better treatments and, ultimately, a cure for Parkinson's disease

Parkinson's Humor

YumaBev fights Parkinson's Disease with HUMOR! Telling funny stories, sharing tips, and making people LAUGH! Come join the FUN!

The PD Gardener

I have Parkinson's Disease (PD) and I am a gardener. I am an expert in neither. This blog is a little bit about PD, a little bit about gardenening combined with historical references to various places and events that have shaped my existence. Ottawa Ontario Canada

Write, Run, Live

When my husband was diagnosed with Parkinson's Disease four years ago, I was relieved to finally have answers to ten plus years of questions: For example: Why was he suddenly unable to chew and swallow - causing him to lose 50 pounds in a few months?

Website at, Howell, NJ. 478 likes ยท 3 talking about this. This page is for all who are battling PD. Any info I post about exercise, nutrition...

Rob Harris, SPHR (@Rob_Cares) | Twitter

The latest Tweets from Rob Harris, SPHR (@Rob_Cares). Caregiver to 2x cancer survivor, author, speaker, radio host & coach. We're In This Together - A Caregiver's Story, released July, 2012. Amazon #1 bestseller!. St. Augustine, FL

Robyn Michele Levy (@Robyn_mostofme) | Twitter

The latest Tweets from Robyn Michele Levy (@Robyn_mostofme). Write + Art + Radio + DiverseDiseasePortfolio = MOST OF ME Shortlisted 2012 Leacock Humour & Edna Staebler Creative NonFiction Awards Vancouver

Dawn May (@DawnMayBooks) | Twitter

The latest Tweets from Dawn May (@DawnMayBooks). Keep tweeting, my friends. Not just Parkinson's. Books, health, education. Even politics Share thoughts with me. Bristol, UK

Parkinson's UK - Homepage

Parkinson's UK - we're the Parkinson's support and research charity. Help us find a cure and improve life for everyone affected by Parkinson's.

Parkinson's Ireland (@ParkinsonsIre) | Twitter

The latest Tweets from Parkinson's Ireland (@ParkinsonsIre). We are a Dublin based charity, with branches throughout Ireland. Our aim is to assist those with Parkinson's, their families, carers & health professionals. Dublin, Ireland