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Updated by The Road We've Shared on Dec 30, 2016
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Planning Resources

No one likes to think about what will happen to our children when we aren't there to take care of them. These resources will help families plan for the inevitable.

Advocate Arena / Marianne Marts

ADVOCATE ARENA, encouraging, educating & empowering!

10 Must-have documents for parents of children with special needs

When planning for the future it is essential that you have all your document in order. As a general rule, we should keep our estate planning documents in a safe place, which is readily accessible in the event they are needed.

Developmental Disabilities | End Of Life Care | End of Life Decisions

Many of the conversations that surround end-of-life care include concepts and language that are challenging to follow, especially for people with developmental disabilities. Together with our partners, the Coalition for Compassionate Care of California (CCCC) has created a guide that enables people with developmental disabilities to advocate for themselves and stay in control of their lives through the very end.

Running Start - First Steps for Writing the Letter of Intent

Tips for writing down the basics about your loved one.

Microboards and Guardianship

A story about using a group of people as guardians.

Free Trustee Handbook - Special Needs Alliance

Have you been named as trustee of a special needs trust? Have you created a special needs trust, and wonder what the job of trustee is actually like? Are you a trust beneficiary, trying to figure out what the trustee is permitted - and required - to do?


Dropbox is a free service that lets you bring your photos, docs, and videos anywhere and share them easily. Never email yourself a file again!

You can use Dropbox to store copies of important records so that you can access them from anywhere and share them with other caregivers.

Plan for the Future: Your Own and Your Son's or Daughter's

A three-part series There are an estimated 600,000-700,000 adults with intellectual and developmental disabilities (I/DD) in the United States who are living with aging family members and there is no plan in place for their future.

Letter of Intent Template

Letter of Intent Template
Remember, these questions should serve as guidelines only. Feel free to adapt
this outline to reflect your own priorities and family circumstances.

Date revised:      


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