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Updated by Gail Zahtz on Jul 12, 2017
Headline for Lupus Resources
Gail Zahtz Gail Zahtz
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Lupus Resources

In honor of Lupus Awareness Month, and for the reality that people live with lupus 365 days a year, not only during the month, here are best resources- open for people to vote, add, share and embed, of resources or patients, caregivers, health care providers and all those who care about living the best life and find a cure for lupus.

Alliance for Lupus Research - Prevent Treat and Cure Lupus Through Medical Research

The Alliance for Lupus Research is the world's largest private funder of lupus research, committing almost $90M to date. We aim to find better treatments and ultimately prevent and cure systemic lupus by supporting bio-medical research. 100% of the proceeds goes directly to research.

Faces Of Lupus

A series of videos of people with lupus who literally "put a face" on what many say is an "invisible disease."

Lupus Research Institute

The LRI is solely dedicated to novel research in lupus. It was founded in 2000 by people with this devastating illness and their families in collaboration with the country’s leading scientists. At the time, the outlook for lupus was relatively bleak, with little movement towards greater understanding of its cause or a potential cure. Decades had passed with no new treatments approved.

Interactive Lupus Glossary

Lupus is one of the most complex diseases for scientists to decode and for patients to comprehend. The Alliance for Lupus Research (ALR) understands that many people -especially those newly diagnosed with the disease - grapple with the words and terms used to describe lupus and its often multipart and varied manifestations. This is a comprehensive interactive glossary to learn more about lupus.

Collaborating for a Cure for Lupus

ALR-LRI Collaboration to Accelerate New Lupus Treatments Moving at Fast Pace | Lupus Research Institute: The Alliance for Lupus Research (ALR) and the Lupus Research Institute (LRI) are excited to report rapid progress on the cooperative project we launched just months ago to fast-track scientific analysis and identification of potential new treatments for lupus. The lupus community participates with comments, ideas and input on the program's dedicated LinkedIn site, LRxL STAT.

The Lupus Initiative

The Lupus Initiative ® is a national education program designed to reduce health disparities experienced by patients with lupus. We develop educational resources for students and practitioners of medicine and the health professions - CME activities, case studies, a curriculum on lupus and health disparities, communication tools and more - to assist and support them in the diagnosis, treatment, and management of patients disproportionately affected by lupus based on race, ethnicity, and gender.

Lupus Foundation of America

We are devoted to solving the mystery of lupus, one of the world's cruelest, most unpredictable, and devastating diseases, while giving caring support to those who suffer from its brutal impact.

Celebrity Faces of Lupus

Learn more: Lupus touches so many people -- those who have the disease, their family and friends, to the scientists who devote their careers to finding answers that will lead to a cure. These are all the Faces of Lupus. Follow Us: #FacesOfLupus

Video Reference Library on Lupus

A project of the Lupus Initiative- a set of educational videos about lupus.

International Resources for Lupus

A list of links to websites of lupus groups from around the world - search by country and region.

Butterfly Tattoo - The Short Film

Butterfly Tattoo - The Short Film Butterfly Tattoo - The Short Film ★ Official contribution for 'World Lupus Day', May 10th, 2014. ◘ 'Lupus' is a deadly auto-immune disease and Invisible Illness, which is still incurable. The personal story of Myra, a musician and producer living with Lupus.

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