The Road We've Shared
Assorted resources about adults who have Down syndrome
Down Syndrome Online offers a comprehensive, reliable and up-to-date range of information, resources and services for families, practitioners and researchers caring for, supporting and investigating Down syndrome. Down Syndrome Online is published by Down Syndrome Education International, a leading charity dedicated to advancing the understanding of effective ways of help the development and education of people who have Down syndrome.
From the Alzheimer's Association: As they age, those affected by Down syndrome have a greatly increased risk of developing a type of dementia that's either the same as or very similar to Alzheimer's disease.
Support group from the UK has a section on adults 18+ Down's Syndrome Association - Helping people with Down's syndrome to live full and rewarding lives
This educational series is designed to aid caregivers who are helping a loved one suffering from dementia. Follow Harold and Margaret as they face common issues surrounding dementia in-home care, including home safety, legal matters, dealing with problem behaviors and learning relaxation techniques.
Welcome! If you are providing care to an older or disabled family member or friend, you know that navigating the long-term care system can be difficult. This state-by-state resource is intended to help you locate government, nonprofit, and private programs in your area. It includes services for family caregivers, as well as resources for older or disabled adults living at home or in a residential facility. It also includes information on government health and disability programs, legal resources, disease-specific organizations and much more.
Toolkit for Primary Care Providers
When planning for the future it is essential that you have all your document in order. As a general rule, we should keep our estate planning documents in a safe place, which is readily accessible in the event they are needed.
Articles by Special Needs Alliance Members including: Brian Neal Rubin, J.D., "Running START: First Steps for Writing the Letter of Intent" Parenting Special Needs.org, January 2014
Children and Adults: Vision: 15% have cataracts 20% - 70% have significant refractive errors 5% - 15% of adults have keratoconus Hearing: 50% - 80% have a hearing deficit Neonatally: refer immediately to an ophthalmologist if the red reflex is absent or if strabismus, nystagmus or poor vision is identified Arrange ophthalmological assessment: first by 6
The Road We've Shared is an online community for parents and caregivers of adults who have Down syndrome
