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Updated by Gail Zahtz on Jul 12, 2017
Gail Zahtz Gail Zahtz
57 items   6 followers   2 votes   186 views

Patient and Caregiver Advocates on Twitter

New twitter list to add to and use for patient and caregiver advocate accounts- people and organizations representing patient and caregiver needs- Add yours!

Pacific Cove (@PacificCove)

Articles: Alzheimer's, Autism, BrainTumor, Cancer, Diabetes, SeniorCare & Veterans -

Denise M. Brown (@caregiving)

Caregiving Author, Speaker, Coach. | Founder, | Tweets from me and bloggers. #carechat and #eldercarechat

Quotidien du Patient (@TheDailyPatient)

Un patient...impatient...#Epatient..qui vit au quotidien et fait bouger les lignes de la #santé

Sandy Swenson (@SandySwenson1)

The Place Where Love And Addiction Meet. Mother of two sons, one of whom is an addict. Author. Open book.

NYCPatient (@NYCPatient)

Being alive without being able to live is not living.

Sing Lun (@roadmapchange)

Nurse,a healthcare advocate in bringing positive change to the Canadian healthcare system through best practices, evidence based design, feedback from patients

Young Champions (@AlzYoungChamps)

Alzheimer's Association Young Champions: The Next Generation's Fight to End Alzheimer's. #ENDALZ (@CareNovate)

Created by #caregivers #moms #healthcare providers. #patientsafety #medsafety #healthliteracy #socialhealth. Tweets @carenmag

Mary Anne Sterling (@SterlingHIT)

Co-founder, Connected Health Resources. Family Caregiver and Advocate for Alzheimer's Families. Speaker.

CIDP  (@AyeshaKhan101)

CIDP, Polyneuropathy Fibromyalgia, PTSD Joint Pains
❤ God❤

Read the E-BOOK for cure of all diseases at


FMD Chat (@FMDChat)

International nonprofit supporting those affected by fibromuscular dysplasia—FMD Chat connects patients, family members & providers via social media. #FMDaware

Ken Jaques (@kenjaques)

Awaken the Healer Within: HEAL Yourself, HEAL the World - Healed from RA diagnosis:
Focus on Wellness, Prevention and Healing. If not you, who?

CP Family Network (@cpfamilies)

We are a community of families whose children have cerebral palsy caused by medical errors and birth injuries. Follow us to receive news, tips, and resources.

Migraineur (@MotherStormy)

Retired on disability pension from Meniere's Syndrome and Migraine Disease. Sometimes I'm Stormlaughter. Always I'm a mother. :D

Dayna (@PIMatters)

Mom of 3 kiddos with PI, on Gamma Globulin, this is what I know: PI matters, Ig Therapy Matters, Plamsa Matters and real and relevant tools for patients MATTER!

NeedyMeds (@NeedyMeds)

Non-profit website of free information on programs that help people who can’t afford their medications. See our free drug discount card and list of free clinics

AnneMarie Ciccarella (@chemobrainfog)

Fierce advocate, activist, blogger, #FearlessFriend. Me? NED. My mom? Dx'd 3x: '87/'07 and in 2013-mets. No meaningful progress in 40 yrs is my call to action.

kathy kastner (@KathyKastner)

TEDxTalker who loves listening learning sharing. appreciate humour happiness and eating chocolate covered almonds. End of life goal: a joyous exit

Bobblehead Dad (@jimhigley)

[Award-winning Author, Speaker & Radio Show Host][Contributor: HuffPo, Men's Health, NBC iVillage][Cancer & Fatherhood Activist]

Lynn Wilson (@CaregiverTweets)

I'm Lynn, Founder of The CareGiver Partnership. We provide advice, resources, services and products to caregivers and their loved ones nationwide.

PilotHealthAdvocates (@ClaudiaNichols)

Credentialed patient advocate, speaker and educator empowering healthcare consumers with life care planning.

kait b. roe (@kaitbr)

Patient Engagement Champion, find my work @fuse_kait Lover of dogs,irony,compassion,folk music,progressive politics,gardening and all kinds of books.

Dana Webster (@ddwebster)

2x Hodgkins survivor, mom, wife, pharma veteran, student of social media. Employer: Roche Diagnostics. Opinions are my own.

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