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Updated by The Road We've Shared on Jul 07, 2015
Headline for National Disability Information
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National Disability Information

A list of resources that show national data on disability issues.


United Cerebral Palsy (UCP) releases The Case for Inclusion each year, tracking the progress of community living standards for Americans living with intellectual and developmental disabilities (ID/DD).

Guardianship - The ARC

National position statement on guardianship

SSA - Digest of State Guardianship Laws

List of state laws and whether the guardianship finds a person "incompetent."

Future Care Planning

A Roadmap for Family Caregivers

Adult Guardianship and Protective Proceedings Jurisdiction Act

Addresses the issue of jurisdiction over adult guardianships, conservatorships & other protective proceedings, providing a mechanism for resolving multi-state jurisdictional disputes.

NGA - National Guardianship Association, Inc.

The mission of NGA is to provide educational training and networking opportunities for guardians and about guardianship; to promote highest levels of values, standards and ethics; and to ensure a nationally recognized standard of excellence.

National Disability Rights Network

The National Disability Rights Network advocates for disability rights on a large scale.

Website at

Provides state by state information including length of waiting lists.

What Is A Medicaid Waiver? Medicaid Waivers help provide services to people who would otherwise be in a nursing home or hospital to receive long-term care in the community. Although there are waivers for many conditions, our focus is towards waivers for people who have intellectual disabilities, developmental disabilities, and autism.

The Arc | NCCJD Resources By State

About NCCJD: The Arc's National Center on Criminal Justice & Disability (NCCJD) will serve as a national clearinghouse for information and training on the topic of people with I/DD as victims, witnesses & suspects or offenders of crime.

National Disability Institute

In 2005, a small group of parents, family members, and individuals with disabilities joined with leading thinkers and practitioners in the disability and asset building communities to launch National Disability Institute (NDI). Rather than focusing on access to traditional services similar to other disability organizations, this new entity was the first to address issues impacting the economic future for individual with disabilities and their families.